Tuesday, 21 April 2009

Standards of Care for people with secondary breast cancer


Dear Breast Cancer Voice,

Standards of Care for people with secondary breast cancer

I am contacting you as members of Breast Cancer Voices who are all keen to comment on our secondary breast cancer campaigning work. We have recently drafted a set of Standards of Care for people with secondary breast cancer which we would very much appreciate your comments on. I would very much appreciate your comments by Thursday 30 April.

The Standards of Care are for people with secondary breast cancer and the aim of them is to:

Make them aware of the care they should be receiving
Offer suggestions as to how to get this care for themselves
Explain how they can become a ‘champion’ of the standards in their area and get involved with their cancer network to improve care for themselves and others with secondary breast cancer (if they want to)

As you all know we produced the Secondary Taskforce final report last November and in essence this is a version for patients. We see part of the campaign of implementing all of the Taskforce recommendations is giving patients the tools to be able to influence change locally. Hopefully it should empower patients and also give them the knowledge to be able to campaign if they want to.

The standards will be produced in two formats: a ‘Taking Action’ booklet and a summary leaflet.

I would welcome any comments you have on the Taking Action document – in particular:

Do you have any other suggestions about how patients could influence change locally?
I would like to include as many quotes and case studies as possible from patients and healthcare professionals throughout (see blue text). If you have experience relating to any of the issues highlighted in this document please do share this with us and make it clear if you are happy for us to use your quote and name in the document.
Now the Taskforce has ended we are looking for a new name for our secondary breast cancer campaigning work – any suggestions would be very welcome.

In terms of dissemination, the leaflet will be included in our secondary breast cancer resource pack and patients will have to contact us for the ‘Taking Action’ document.

Also to let you know we will be launching these documents at two events:

in Scotland on the 4th June at Scottish Parliament
in England on 16th June at the RussellHotel, London
Breast Cancer Voices will be invited to these events – please look out for more information and keep these dates free.

If you have any questions please do get in touch. Thank you in advance for any comments/or feedback on this document you are able to give, it is greatly appreciated.

I look forward to hearing from you.

Many thanks and kindest regards

Vicky Lane

User Involvement Manager


Breast Cancer Care

5-13 Great Suffolk Street , LondonSE1 0NS

Direct line: 020 7960 3447 Switchboard: 0845 092 0800


Registered charity in England and Wales 1017658

Registered charity in Scotland SC038104

Registered In England company no 2447182

Secondary Breast Cancer Taskforce

Breast Cancer Care’s Secondary Breast Cancer Taskforce has published its findings and recommendations to improve the treatment, care and support for people with secondary breast cancer . Breast Cancer Care will now be taking the work of the Taskforce forward. To read the final report and other materials visit www.breastcancercare.org.uk/secondarytaskforce

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Breast Cancer Care

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Registered office: 5-13 Great Suffolk Street, London SE1 0NS.
Company registered in England and Wales: number 2447182.
Charity registration numbers: 1017658 in England and Wales, SC038104
in Scotland.

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